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Postings from the Edge <GRIN>

From http://www.lef.org/protocols/prtcl-009a.shtml

A specific natural therapy to restore healthy platelet production is 5
capsules a day of standardized shark liver oil, containing 200 mg of
alkylglycerols per capsule. Studies have shown that shark liver oil can
boost the production of blood platelets. Studies have also shown the
immune enhancement capabilities of shark liver oil (J. Alt. Compl. Med.,
1998 Spring; 4 [1]:87-99). As will be discussed later, melatonin may be an
especially effective and safe therapy to treat thrombocytopenia.

CAUTION:
Shark oil capsules should be taken in high doses for a maximum period of
only 30 days, because otherwise too many blood platelets might be
produced.

Oh,
that it should be!!!!!!

But,
hey listen to this one:

Horse
Serum???  Rabbit Serum??? Introducing highly toxic drugs like
cyclosporine and ATG that wiped out my red blood cells.  I had half
way decent reds and whites until they started whacking me with their
conventional wisdom treatments for low platelets.  Now I can’t make
anything!!!!

Date: Sun,
16 Apr 2000 07:24:00 -0700
Reply-To:
"Aplastic Anemia and Myelodysplastic
Syndrome support list." <AA-MDS-TALK@LISTSERV.AOL.COM>
Sender:
"Aplastic Anemia and Myelodysplastic
Syndrome support list." <AA-MDS-TALK@LISTSERV.AOL.COM>
From:
Charles Kesner <yacky@USWEST.NET> Subject:
Aplastic
Content-Type: text/plain;
charset=us-ascii

My son was diagnosed with AA in Sept of 98. I have been reading
everyone’s report and have written a few times. He had ATG and was on
cyclosporine for about a year and then refused to take it because it made
him gag and he felt sick. He just quit taking it. The Dr. put him on
Prograf and it was a lot better. He took it for about 3 months and at this
point has quit taking it. We have decided to go with alternative healing
since the Dr’s don’t really know how to treat this dreadful disease. He
started having auricular accupunture and natural healing in Feb of this
year. He is taking a liquid supplement called seasilver, colostrum and
shark liver oil great immune boosters and milk thistle and dong quai. His
platelet count in Jan was 75,000 as of April they are 150.000. He will be
leaving Thursday to go to Germany to visit a friend for a month. Listen, I
work in a pharmacy I see how Dr. use people for guianna pigs. Seek out
information for yourself and try different things. They have no idea what
to do for AA. They are just doing a regimen that everyone else does. Try
to heal your body naturally, forget the chemicals. Let it be the last
resort. My son is 20 years old and doing great. Thank the Lord. Connie

THE BENEFITS OF FISH OIL

Fish oil has many names. One of the most common is omega-3 fatty acid
or its scientific abbreviation, N-3. N3 fatty acids are found
mostly in fish, but are contained in other foods as well. Fish oil is the
best food source of these fatty acids.

The
primary benefit of N-3 fish oil is the reduction of platelet activity

(blood clotting) and plaque formation which in turn can prevent heart
attacks. Here’s how it works.  The
nutritionist at EHCD has me on omega 3!!!!!!!!

Platelets are clot-forming blood cells which prevent excessive
bleeding. Overly active platelets, however, may speed the build-up of
plaque, a deposit of fatty or fibrous material which narrows a blood
vessel wall. Elevated blood cholesterol also contributes to the
acceleration of plaque formation. When plaque narrows an artery it is
easier for a blood clot to get stuck in the artery and this can cause a
heart attack. Because platelets also form blood clots, this is likely to
occur. That’s why it is desirable to reduce platelet activity and why N-3
fatty acid, fish oil, is beneficial.

 

Always being one to consider what happens if this doesn’t work
(no, i was not a boy scout, but I sure did work on lots of sales and computer
projects that required thinking through alternative strategies), I decided to
add this section to Alternative Healings but to keep it separate cause some of
it is a little further out from the mainstream.  

However, I did not want to lose track of it, in case my current
strategy does not evolve properly, so here are some other alternatives that are
being used by others or being investigated for autoimmune related disorders.
Many thanks to the ITP group for much of the content.  Appropriate credits
to the Platelet Disorder Support Association
and its members for an open minded approach to their illnesses. (Most people in
AA are staying pretty close to CW (Conventional Wisdom).

Would love to hear from others who have had success (and
failures for that matter) with alternative strategies or who have read about
them and decided for whatever reason to not try them.  Please post in the forum
and I will also transfer them here for the record.

http://www.moducare.com/index.html 
– Information below from this site

Author: Anne O’Garra

Source: Lancet, vol. 1, #8644, pp. 943-946, 1989

The immune response has two ways of
dealing with foreign pathogens. The B-lymphocytes synthesize specific
antibodies called immunoglobulins. This is known as humoral immunity. The
other system involves T-lymphocytes, which regulate the synthesis of
antibodies as well as direct killer cell activity and the inflammatory
response of delayed type hypersensitivity. This system is known as
cell-mediated immunity. The T-cells are further divided into helper
lymphocytes (Th) and cytotoxic (Tc), also known as suppressor cells. When
the T-cells encounter a foreign pathogen (antigen) they further secrete a
number of communication molecules called lymphokines, cytokines,
interleukins or interferons. These factors further elaborate and direct
the immune response to a specific antigen. The whole process is a symphony
of many co-factors, which are orchestrated into a sophisticated immune
response. The T-helper cells are directly involved in assisting B-cells as
well as coordinating their own cell-specific defense. The T-helper cells
are further divided into two distinct lines of defense. The Th1 cells
promote the cell-mediated line of defense and inhibit the other line known
as Th2 cells, which regulate the humoral defense. The Th2 cell lines
control the B-cells and inhibit the cell-mediated response of the Th1
lymphocytes. 

A careful balance
between these two functions is thus achieved. When one line predominates,
there is the opportunity for immune dysregulation to occur resulting in
either a hyper-immune response causing an autoimmune disease or a
hypo-immune response resulting in an uncontrollable infection such as AIDS
or tuberculosis. The Th1 helper cells secrete lymphokines such as
interleukin-2 and gamma interferon. Th2 helper cells secrete
pro-inflammatory lymphokines such as interleukin-6, interleukin-4 and
interleukin-10. Interleukin-1 appears to be released in response to a
specific injury and acts as an inflammatory mediator. Interleukin may be
over-expressed in diseases such as rheumatoid arthritis and osteoarthritis.
Interleukin-1 deficiency is associated with metastatic tumors, nutritional
deficiencies and certain autoimmune diseases. Interleukin-6 is associated
with pro-inflammatory responses as well as mediating the proliferation and
maturation of T-cells. High levels of interleukin-6 have been associated
with a variety of autoimmune conditions such as rheumatoid arthritis,
Sjogren’s syndrome, multiple myelomas, and some cancers such as cervical
and bladder. Interleukin-2 is a growth factor for T-cell maturation as
well as an inducer of T-cell cytotoxicity and natural killer cell
activity. Interleukin-2 deficiency would cripple the cell-mediated immune
response and its stimulation would enhance the overall efficacy of the
immune system. Immune dysregulation occurs when the two sides of the
immune response become imbalanced.
 

A greater appreciation of immunotherapies
is achieved with a more detailed understanding of the complexity of the
immune system.

Blood Type Diet

Dr. Peter J. D’Adamo, in his book Eat Right for Your Type explains
that our blood type antigen is the first line of defense in telling whether
something in our body is foreign. It is the blood type antigen that creates the
antibodies. A chemical reaction occurs between our blood and the food we eat.
Some foods have proteins that are close in chemical structure to antibodies that
are incompatible for a particular blood type. When we eat these foods our body
mistakes them for invaders and pastes them together or glues them to various
organs. This mistaken identity enhances the disease process. In addition,
individuals with Type O blood often did not inherit certain clotting factors as
they evolved. This could result in ‘thin’ blood or resistance to clotting. The
book then offers diet changes for each blood type.

Since ITP is a mistaken antibody blood disease and we need all of the
clotting power we can muster, this work could have particular relevance.

Read Taryn’
s success story
for a personal account.

You can purchase a copy of Eat Right for Your Type in the Platelet
Store.

Macrobiotics

In its simplest form, it is a diet that is aimed at restoring and maintaining
health by considering the energetic qualities of food. In it’s more complex
form, it is a way of life that considers what we eat, see, wear, where we live,
and how we communicate. Macrobiotics defines the world in terms of expansive
energy (yin) and contractive energy (yang) . Macrobiotic diet theory suggests
that we eliminate all food that is processed, fragmented (including vitamins),
toxic (nightshade family) or either very expansive like alcohol, or very
contractive, like meat. It comes down to a whole foods, non-dairy, vegetarian
diet with a bit of fish.

Within the general parameters of the diet, it is adjusted for specific
conditions. ITP is an expansive disease (blood literally expanding through the
vessel walls). Therefore, in macrobiotic theory, people with ITP should eat
foods that are more contractive to bring them into balance. These include foods
that are well cooked and a bit salty. They should also eliminate or reduce foods
that are expansive. These include all sugars, including fruit, and raw foods.
This is a general example. The actual application of these principals varies by
individual and is much more complex and sophisticated.

From another vantage point, the macrobiotic diet could be beneficial to those
who have ITP because it recommends the elimination of many foods that cause
allergic reactions. This reduces the allergic load on the body and reduces
strain on the immune system. It also eliminates foods that create strong
reactions in the body, like white sugar. This reduces stress and therefore,
promotes healing. It eliminates foods that promote free radical damage like
white flour or foods processed with nitrites. Stress and the proliferation of
free radicals have been linked to causing autoimmune diseases. It also helps
balance blood PH. (acid/alkaline level). Most disease conditions are associated
with a blood and body fluid level that is overly acidic.

Joan’s platelet counts have been holding at 350,000 for several years, due in
part, to diet changes.  Read
Joan’s story
for more info.

"My platelets have gone from 100 to 146 in 4 months with no drugs —
just a grain and vegetable (macrobiotic diet). It’s been a learning experience
to eliminate caffeine and dairy and sugar… I have never eaten so much food and
managed to loose some weight. Win-win situation. Just wanted others to know this
is a possible alternative to drugs
."    Shannon  srlight@aol.com

http://www.drweil.com/

http://www.doctormurray.com/

Short Stories

If you have an interesting or unusual story, you
can send it to us and we will
consider posting it here. It should be 400 words or less. A link
to your e-mail address is optional. When you write, be sure to
indicate that you want your story published in the Short Story
section.

Leonor’s
Cure
 

I was 22 when I first noticed the drop in my platelets during a
routine physical in Aug.1997. I had them between 128,000 to 99,000
within a year. I went to see a specialist but it wasn’t an extreme
low count and I had no symptoms of anything. When I went back
again in Oct.1998 they were at 9,000 only to drop to 1,000 in the
5 days I was hospitalized. They started the prednisone, some other
steroid, folic acid, IVIG infusion twice and finally the rhogam
injection that brought it up to a "safe" 22,000.

The research began and I was convinced that a splenectomy would
be the only cure. One month later, at 19,000 the splenectomy
brought it up to 200,000! I went back two weeks later and it began
to drop again. I started taking herbal teas to cope with the
prednisone side effects and a possible end to all this. I was
taking about 11 cups of tea a day. The prednisone kept it up but
every time I decreased the dosage the platelets went with it. That
wasn’t working for the platelets but it was great on the side
effects. Not all of them though!

Finally my only choices were chemotherapy or experimental
procedures. My father started researching and found Dr. Ba.
Although I’ve only spoken to him on the phone, he’s helped me so
much. He got me started on this tea called Radix Rehmanniae
Preparata and some in a pill form. It’s a cake like tea that
doesn’t taste that good. After drinking two cups a day and four of
the pills my platelets increased by 10,000 even after I started to
wean myself off the prednisone. In May 1999 my platelets are at
70,000. My last prednisone was June2. Now on July 1999 I’m at
258,000. I still take my normal vitamins and now the Chinese
pills. I really hate this illness but this was more like a
blessing in disguise…. to take better care of myself.

Leonor  

 

WILD CLAIMS FROM NATURAL HEALTH CONSTULTANTS

Thrombocytopenia

Natural
Health Consultants

 

Thrombocytopenia
means low platelet counts. It is characterized by microvascular (small
blood vessels) leaking with platelet aggregation (clumping.) It is most
common in adults and is often associated with pregnancy, HIV, cancer,
certain bacterial infections, vasculitis, bone marrow transplants and
various drugs. Platelets are the small cells in the blood stream (yes,
they look like little plates) that initiate the clotting process. When
they are damaged they release a substance which dramatically increases
platelet adhesiveness and may cause further complications.

The cause of
this condition is still unknown though Thrombocytopenia of unknown origin
(idiopathic) is believed to be an autoimmune
condition.

Addressing
this problem first involves fixing the condition that caused it, if
possible. If it is idiopathic refer to the Immune
Dysfunction
page for some ideas.

A few
substances yield good results, too.

Melatonin
at 10 to 40 mg per night raises platelet counts. Some people cannot
tolerate more than 3 mg. 

Alkylglycerols
are also highly effective in high doses. 10 capsules per day of Alkyrol
500 mg is the usual dose. Limit consumption to 30 days to avoid
overproduction of platelets.

According to
Bradley Bongiovanni, ND., the cell salt called Ferrum Phos 6X at 5 pellets
twice daily on an empty stomach is "renowned" for raising
platelet counts.

Melatonin
study from Scientific American

Across the nation, insomniacs, the sick and the simply curious are
gobbling up melatonin. The hormone is being touted in the
popular press
as a natural way to get a better night’s sleep, to
improve one’s sex life, to live longer and to fight the ravages of AIDS,
Alzheimer’s disease and cancer, among other afflictions.

Boosted by cover stories in Newsweek and by a rash of
uncritical books
, melatonin seems to have taken over from beta
carotene as pop medicine’s Next Big Thing. (Beta carotene, another natural
substance, recently disappointed enthusiasts when a clinical
trial
found that it not only fails to prevents cancer in smokers, but
may actually promote it.)

A backlash against melatonin hype is now under way. Critics warn that
the doses of melatonin commonly sold in health food stores–which raise
levels of the substance in the blood 30-fold higher than their normal
peak–could be dangerous for some people. And many researchers and
fad-watchers point out that the more startling claims being made for the
substance are unsupported by studies on patients. They are, rather.
starry-eyed extrapolations from experiments conducted on rats and mice.
These animals differ from people in many ways, especially as regards
sleep, the one aspect of human physiology that melatonin clearly affects.

Richard Wurtman, a researcher at the Massachusetts Institute of
Technology, has spent years studying
melatonin
and its biological effects. He has described some of that
work in a Scientific American article
("Carbohydrates and Depression" by Richard J. Wurtman and Judith
J. Wurtman in SA, January 1989). Wurtman says there is "no
controversy" that the substance, in doses of a fraction of a
milligram, can induce sleep and shift the sleep cycle. Summaries of his
findings appear in an M.I.T.
press release
.

But Wurtman, the named inventor on an M.I.T. patent covering the use of
melatonin for controlling sleep, says there is "no evidence"
that it has any effect on human life expectancy, and "only
marginal" evidence that it promotes longevity in mice. Wurtman
further maintains that health-food store doses of melatonin might diminish
sex drive. He also denounces as "wicked" the suggestion that
people with cancer or AIDS should take the hormone: Wurtman thinks
melatonin is as likely to worsen those conditions as to ease them.

Wurtman is not the only researcher criticizing melatonin mania. In an article
published in Cell
, Steven M. Reppert and David R. Weaver of Harvard
Medical School recently described as "seriously flawed" an
experiment by Walter
Pierpaoli
, William
Regelson
and others that kindled hopes melatonin might extend life.

The investigators prolonged the life of elderly mice by giving them
transplants of tissue from the pineal gland (an organ that responds to
melatonin in the bloodstream) taken from younger mice. Pierpaoli and
Regelson hypothesized that the transplanted tissue was more responsive to
melatonin and somehow revitalized the old mice. But according to Reppert
and Weaver, the mice used in the experiments have a genetic defect that
means they cannot make melatonin; attributing the effect to the hormone is
therefore "absurd."

Regelson and Pierpaoli’s book "The Melatonin Miracle" (a
chapter outline is available
) is one of the most unrestrained of the
current crop. Regelson asserts that he and Pierpauli wrote their book
because pharmaceutical companies are likely to drag their heels on
melatonin research, owing to the difficulty of patenting a substance found
in nature, whereas "I am 70 years old and I have a time
constraint."

But Fred W. Turek
of Northwestern University, writing in Nature,
points out that "not one study" in humans supports Pierpaoli and
Regelson’s claim that, for example, melatonin helps to prevent heart
attacks. Victor Herbert and Ruth Cava of the American Council on Science
and Health caution that children, women who are nursing or who may become
pregnant, and people who have immune-system disorders should avoid taking
the hormone because of uncertainties about its effects.

The Food and Drug Administration is collecting occasional reports of
ill-effects from melatonin, but says it will not control the compound
unless a study clearly shows that its consumption is harmful. As for the
promised benefits of melatonin, a good deal more research is needed to
demonstrate if it truly has uses beyond a sleep aid. See, for instance, a
sober assessment by
the Mayo Clinic
.

Whether established scientists are willing to take on the task is
unclear. The National Institutes of Health spent $4.8 million in 1995 on
sleep studies and investigations of the effects of melatonin, according to
budget
documents
. But, says Andrew A. Monjan, chief of neurobiology at the
National Institute on Aging, the agency "has not received meritorious
research grant applications" to investigate other uses of the alleged
wonder hormone. –Tim Beardsley, staff writer

 

Mycoplasma

Natural
Health Consultants

 

What
do Gulf War Syndrome, Fibromyalgia,
Chronic Fatigue Syndrome
, Atypical Pneumonia, Rheumatoid
Arthritis
, Multiple
Sclerosis
, ALS,
Lupus
Erythematosus
(or other autoimmune diseases,) AIDS,
and Cancer
plus many others have in common? They are all associated with a strange
pathogenic organism called a mycoplasma. Mycoplasma species are either the
cause, a co-factor or an opportunistic germ which many studies have
associated with these conditions.

These
strange organisms are classified as prokaryotes, somewhere between
bacteria and viruses. They are cellular organisms which lack a true
nucleus or nuclear membrane. Instead of cell walls (no gram + or -) they
have a plasma membrane which is sticky and allows them to attach to your
body cells. Once they attach to your cells they feed off of them. They can
even do something bacteria usually don’t but viruses do, and that is enter
your cells. One of the reasons that they attach to your cell membranes is
because they are rich in cholesterol. Cholesterol, along with the amino
acid L-Arginine, is mycoplasma’s favorite food. They even feed off the
waste products of your body’s cells.

Mycoplasma
have been generally unrecognized by medical science until recently because
of their peculiar characteristics. Certain species can attack any cell in
the body and when they do they alter their appearance and structure, which
makes them difficult to detect. They can even enter the cell itself like a
virus which means that ordinary tests don’t detect them as they would an
extracellular organism. Multiple species (see the chart below) of
Mycoplasma may inhabit the same person producing a confusing array of
overlapping symptoms.

The Main Human
Mycoplasma Pathogens


Pathogen / Implicated Disease 

Mycoplasma genitalium Arthritis, chronic nongonococcal urethritis,
chronic pelvic inflammatory disease, other urogenital infections
and diseases, infertility, AIDS/HIV
Mycoplasma fermentans Arthritis, Gulf War Syndrome, Fibromyalgia,
Chronic Fatigue Syndrome, Lupus, AIDS/HIV, autoimmune diseases,
ALS, psoriasis and Scleroderma, Crohn’s and IBS, cancer, endocrine
disorders, Multiple Sclerosis, diabetes
Mycoplasma salivarium Arthritis, TMJ disorders, Eye and ear
disorders and infections, gingivitis, periodontal diseases
including even cavities.
Mycoplasma hominis and Ureaplasma
urealyticum
Two mycoplasmas commonly found in the
urogenital tracts of healthy persons. However, over the years, the
pathogenic roles of these mycoplasmas have been proven in adult
urogenital tract diseases, neonatal respiratory infections, and a
range of other diseases usually in immunocompromised patients.
Mycoplasma pneumonia

 

Pneumonia, asthma, upper and lower respiratory
diseases, heart diseases, leukemia, CNS disorders and diseases,
urinary tract infections, Crohn’s and Irritable Bowel Syndrome,
autoimmune diseases.
Mycoplasma incognitus and

Mycoplasma penetrans
AIDS/HIV, urogenital infections and diseases,
Autoimmune disorders and diseases
Mycoplasma pirum

 

Urogenital infections and diseases, AIDS/HIV

 

They
can cause a bewildering variety of problems which can exist singly or in
combination. Worse, they can come and go at any time. These can range from
a simple sore throat to neurological problems, gastrointestinal problems,
breathing problems, musculo-skeletal pains and problems and so on,
depending upon what they have attacked recently. They even make pain more
intense by increasing the sensitivity to Substance P, the neurotransmitter
that signals pain messages to the brain. 

Since
they love cholesterol, it is thought that they are attracted to the
cholesterol in the arteries and may contribute to vessel rupture. They can
even attack the white blood cells themselves either neutralizing them or
making them hyper responsive. They can exist in tumors where they make
them more aggressive and likely to metastasize. They are theorized by some
to be a co-factor in AIDS.

Apparently
the body tries its best to eliminate these pathogens and in the process
does collateral damage to body tissues, which is theorized by some to be
the source of autoimmune conditions.

Mycoplasma
can be detected by certain tests which your doctor can order. When
detected it is treated in conventional medicine with long term antibiotic
therapy since the organisms are slow growing. This can cause problems as
the organisms can get resistant plus the therapy can cause dysbiosis, or
altered gut flora, a source of many other problems ranging from yeast
infections
to diarrhea. Plus, relapses are quite common.

There
might be a better way.

A
collection of Amazon rain forest herbs has been formulated to deal with
Mycoplasma, called Myco
+.
By all accounts it is deadly to mycoplasma.

Alternatively,
Olive
Leaf Extract
is said to be highly effective against Mycoplasma.

Lactoferrin
or Laktoferrin
with Colostrum
may also be useful.

The Jaffe-Mellor
technique
trains the body to quit attacking itself and is purported to
be quite effective in autoimmune conditions. 

 

 

 



 
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