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Re: Second rate of ATG

From: andrew

Date: 12/3/2003

Time: 5:03:44 AM

Remote Name: 213.2.24.62

Comments

Hi there – actually your son’s response the first time was bang on cue. The ATG protocol states that it is UNUSUAL to see a response before 3 months post ATG, and it is advisable to wait up to 6 months post ATG before coming to a view as to whether the patient has responded or not.

I had two rounds of ATG – the second was 18 months ago. I have been independent of transfusions for nearly a year and lead a full and active life, even though my counts are not ‘normal’ yet.

Given that your son responded well the first time, I would say there is every hope that he will do so again.

I believe you are right to be cautious about the MUD BMT route, which I have come to view very much as a last resort.

Good luck to you.

ANDREW

I wish you the best of luck.


Last changed: September 24, 2006