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long term success

From: Sue

Date: 11/26/2003

Time: 8:11:54 AM

Remote Name: 216.228.163.40

Comments

I’m confused.

The apastic anemia foundation really pushes the drug therapy (horse serum/cyclosporin) and the person I spoke with there says that there is 80% success with the first try. The person I spoke with is convinced it can "cure" AA.

Another bone marrow doctor told me that the stats are 30% "cure", 30% relapse and 30% nothing.

I asked another bonor marrow doctor what the long-term survival rate for the drug therapy was – the answer was 28%. I think he defined "long-term" as over 5 years. This same doctor, from a highly reputable center, told me that there is a 15% chance of surviving with no therapy, but that the quality of life is very low – constant transfusions, etc. This same doctor said that the drug therapy is NOT a cure, although he reccomends it over an unrelated 6/6 BMT.

My understanding is that of the 30% who have a success with the drug therapy, 25% will go on to get leukemia. So in my mind, that brings the "success" rate down a bit – to about 22%.

Does anyone know the stats for getting leukemia after the bone marrow transplant?

Have Bruce or Marla contacted any of the big bone marrow centers or the aplasticanemia foundation to let them know of their success with non-drug healing?

Is there anyone, in addition to Bruce or Marla, who is trying this non-drug, non-invasive approach?

Thanks,
Sue


Last changed: September 24, 2006