Aplastic Archived Forum
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Re: Not feeling as optimistic
From: Judy S
Time: 10:09:52 PM
Remote Name: 188.8.131.52
Kia ora Laura
You asked for a good ATG story. I had ATG, and know of others who have had good outcomes with ATG. My bone Marrow response to ATG was slow & steady , but it has remained enduring. I had ATG in Jan 2000. I was dependant on Platelet trasfusions for 3 months post ATG and RBC trasfusions for 7- 8 months. I am told it was an expected response and timeframes. 3 1/2 years later I feel well, my counts are nearly in the recommended normal range …..but who needs "normal" anyway? -They are just numbers, as long as are out of the dangerous/serious zone. I have a few minor problems with iron overlaod, which is now nearly resolved due to phlebotomies, and I also have pernicious anameia which is easily treated, diagnosied at same time as SAA.
I hope all goes well for your family. ATG was tough, but not unbearable. I did not go into isolation, but was careful. I was in hospital for 7 days for teatemnt and stabilisation then home for rest and visited hospital every 2 days. Many medical procedures and treatments are tough ATG is no different I think (I am a Nurses as well)- but the outcome is that I enjoy improved health and a new perspective on life in hindsight.